I’m seeing that a lot of people are coming to my blog after searching “External Ventricular Drain”. There’s a post about my son when he had one.
It was a challenging time, but he went through it just fine.
I’m writing this post to invite all those who are wrestling with such unforeseen challenges in their lives or the lives of their loved ones to email me with any questions they might have, or just want to talk to someone who has an idea of what they might be feeling.
I have found that it’s the support and love from both loved ones and strangers that really lifted our family through the tough times we had last year. I’d like to be able to offer that same support to others.
Dandy-Walker is not a death sentence. Hydrocephalus, if treated, is not either. Both are manageable, and do not have to cause insurmountable problems. There is much you can read online, and many resources that can educate and help. I will try hard to be one myself.
Email me. Call me, even, if you want to. Eight oh One, Six three six, two zero two six.